This section is intended for patients and carers outside the US only. If you are a healthcare professional, please click here for further information.
Hollie and Annie’s story

Hollie and Annie’s story

Adam’s story

Adam’s story

Poincilit family story

Poincilit family story

Welcome to NPC-info.com

If you have just been told that you may have Niemann-Pick type C disease (NP-C) or if you are looking for information on behalf of a family member or friend, then the information on this site is intended to help you understand more about the condition and to support you in further conversations with your healthcare professionals. If you or someone close to you has already received a diagnosis of NP-C, then this site also provides guidance on accessing help and support.

There are two other forms of Niemann-Pick disease; type A and type B, which have very different causes. This website focuses on Niemann-Pick type C disease and does not include information about the other forms of Niemann-Pick disease.