This section is intended for patients and carers outside the US only. If you are a healthcare professional, please click here for further information.

Patient resources

Here you can find some useful resources related to NP-C for you to view and download.

This report draws together the results of a much-needed piece of research among NP-C patients and their families. It summarizes the information gathered in in-depth interviews, providing an insight into their experience of the journey to diagnosis, the potential physical and emotional impact and the importance of support before, during and after reaching diagnosis.