Niemann-Pick type C disease patient websites

Here are some additional websites containing information about NP-C, including patient groups in your own country, as well as Actelion-sponsored sites.

National patient support groups

 
 
 
Canada
http://www.nnpdf.ca
 
France
http://www.vml-asso.org
 
Germany
http://www.niemann-pick.de/startseite.php
 
Italy
http://www.niemannpick.org
 
The Netherlands
http://www.stofwisselingsziekten.nl
 
Portugal
http://www.rarissimas.pt http://www.aplisosoma.org
 
Russia
http://www.rare-diseases.ru
 
Spain
http://www.fnp.es
 
Sweden
http://sallsyntadiagnoser.se/Vara_diagnoser/Vara_diagnoser/Niemann-Pick_typ_C_/
 
Switzerland
http://www.npsuisse.ch http://www.facebook.com/niemannpick
 
Turkey
http://www.mpsturk.org/NiemannPickHastaligi.aspx
 
UK
http://www.niemannpick.org.uk