This section is intended for healthcare professionals outside of the US only. If you are a patient or a carer, please click here for further information.

Niemann-Pick type C disease websites

Here are some additional websites containing information about NP-C, including patient groups in your own country, as well as Actelion-sponsored sites.

National patient support groups


NP-C information websites in other countries supported by Actelion Pharmaceuticals Ltd


Other Actelion - sponsored websites

The NP-C Suspicion Index is a simple-to-use tool that has been developed by a scientific committee to support physicians not familiar with the disease, in detecting NP-C among patients suspected as having the disease.