Niemann-Pick type C disease websites
Here are some additional websites containing information about NP-C, including patient groups in your own country, as well as Actelion-sponsored sites.
International Niemann-Pick Disease Alliance
Orphanet is a database of information on rare diseases and orphan drugs that aims to help improve the diagnosis, care and treatment of patients with rare diseases.
National patient support groups
NP-C information websites in other countries supported by Actelion Pharmaceuticals Ltd
Other Actelion - sponsored websites
The NP-C Suspicion Index is a simple-to-use tool that has been developed by a scientific committee to support physicians not familiar with the disease, in detecting NP-C among patients suspected as having the disease.